Progression feels good but we've a long way to go.
Hey all! Feels like forever since I’ve done a blog. It’s not, of course, but a lot has happened in our lives and I think that busyness and all the news we've received lately has given me a misconception of time.
Firstly, tutoring is going well. I'm so pleased with Charlie's progress. He really does amaze me every day. I can see him building confidence with learning and using language and skills that he’s not done before which is something we will encourage, myself and the tutor.
We’ve had a response from the NHS complaints I put in last year. It's been found that the NHS department, specifically the camhs team were at fault and we were treated unfairly. The complaint was upheld. We were given an apology and it's down to me if I want it to go any further. This complaint has taken 6 months. I’m not sure at this stage. And Charlie is now back on the waiting list waiting for assessment. So i’m not sure whether it will be beneficial to do this. Hopefully, Charlie will be triaged by camhs and will enter a treatment plan. Only time will tell, but this started in 2019. As part of the evidence I had to gather all our appointments from the point of referral, and it was a lot!!
On the subject of complaints. Our LGO complaint is now in draft and once the decision is published I will share it with you. But it’s extremely good news for Charlie.
We have started with a new speech and language therapist. Although, we're not allowed to use speech and language therapy as Charlie doesn't like the wording! So she's our emotions communication officer. We did 40mins last week which was incredible as I predicted he would only manage 15mins. We're meeting again this week and then it’s our half term.
As usual, our half term is different to everyone else's!! Very annoying. Luckily, our tutor is not going to change his days/times so they'll not be a disruption to next week's learning. And then during half term Charlie and I have a big trip! We're going to London! I've taken a day off work either side of this, so that I can fully support Charlie. It's a really big deal and we'll see what happens. I will of course bring you for the ride!
I almost forgot… coparenting is being fabulous. Charlie now goes every 3rd Friday to his dad’s to sleep overnight! It’s an incredible achievement and we’ve worked so hard, all of is together to make this happen. I'm so proud of us, and Charlie of course!
Georgina x