Today is the first day of the summer holidays. However, if you have followed us for a while you will know Charlie has not been to school for several weeks. I’m currently trying to put a schedule together to give us some structure over the holidays as Charlie becomes very dysregulated when he has no structure in his life. This is a double ended sword as the same structure also gives him anxiety.

Charlie has sensory processing disorder and a spiky profile which means he is incredibly difficult to read at times. This weather is definitely not helping at all. Nights are long and stressful and mornings are early. Together with the battle to improve Charlie’s attendance at school means that life has been more challenging than normal. I have been a bit absent recently, as Charlie’s issues and my mental health hasn’t been great either.

Today I had a mental health assessment and I am hoping with some extra support I can move my mindset around our current situation and start focusing on Charlie’s needs a bit more. Here’s Hoping! There’s been a lot of sadness lately and I really do want to start feeling happier and more positive around our future. I know I should of been more present on social media, but it is difficult to be happy when things aren’t happy.

Monday should be my graduation and although I had previously looked forward to it, now it no longer has the same appeal. Any thought of leaving Charlie and especially one that means staying overnight away from home is difficult for both me and him and will mean prolonged emotional turmoil for Charlie. I am not a fan.

I feel at the moment that we go one step forward and 10 steps back and it is very difficult to keep on top of feeling positive and engaged and that is really sad, it is really sad that life is so difficult right now and I wish it was better. I am hopeful that with some counselling we can change this.

The sun is not helping. Summer is the worst season for us, it is so difficult to manage Charlie’s behaviour and emotions when he becomes so dysregulated. Wish me luck for the summer!!

Take care in this heat.

Georgina x